A month later, on my usual drives through the McDonald's fast food lane, I looked down and saw that usual little box asking for money for the Ronald McDonald Home Charities. Wait, that applies to my family too. When we were faced with moving to San Diego if Rory was a candidate for heart surgery, we were told to look for a place to stay. Treatment would have taken up to a year and we thought at the time that we would have one little baby in the hospital and two at home with us. We were freaked out at the idea of having to find a place to stay so far from home. We were looking at applying to stay at the Ronald McDonald House.
I only knew Easter Seals because of their telethons. Now I know them as a wonderful organization committed to serving those with disabilities and working to help prevent it. They send physical and speech therapists to work month with Slugger in our home free of charge.
Lastly, there's the March of Dimes. They are committed to battling birth defects, premature births, and infant mortality. Their researched helped the development of Surfactant. Slugger's premature lungs were not ready for breathing. When she exhaled and they collapsed, the walls of the lungs would stick to each other and she wouldn't have been able to inhale, expanding those air sacs. She was given surfactant which acts as a lubricant across the lungs to keep air sacs open and minimize scarring. They also have a wonderful online support group for people with sick children or who have lost children. I spent a lot of time on it while Slugger was in the NICU.
In one week, on Saturday, April 23rd, Scott, Slugger and I will be walking in the March of Dimes "March For Babies." We'll be walking 5 miles at Kapiolani Park to raise money for the March of Dimes.
My college friend, Yong, has done the March of Dimes walk annually for years now. He called me up last week and said he wants to walk for Slugger this year. For parents of preemies, it's an honor to put your child's name, gestational age at birth, and birth weight on your shirt for all to see. This year, we'll be celebrating Slugger. Sadly, there are a lot of parents who have shirts that are in honor of preemies who didn't make it (which is why this walk is so important). It's too soon for us to walk for the twins, we're not ready for that. But we can focus on the positive, and walk for Slugger. And next year, we hope to be walk for all our girls.
We still haven't hit our goals YET, but I know we will. If you would like to pledge to our walk, please visit our pages